Wednesday, June 24, 2009

What is the Annabelle's Circle Foundation?

In the spring of 2008, my wife and I were told that our unborn daughter had a severe form of Spina Bifida and would probably not survive long after birth. We were devastated.

I scoured the Internet for information and support regarding Spina Bifida and was dismayed that there was not one central online resource for parents of children with SB. It was surprising since SB is one of the most common permanently disabling birth defects.

Our beautiful daughter, Annabelle, was born August 7, 2008. She was born with T5 level Spina Bifida, Hydrocephalus, two clubbed feet and a kyphosis of the spine. Despite the challenges, Annabelle continues to grow, develop and thrive. She is cute as can be and the light of our lives.

In 2009, approximately one year after Annie was born, we started the Annabelle's Circle Foundation as a way to gather resources and offer support to the SB community as a whole.

Our Mission:

To provide Mental, Social and Physical support to those within the Spina Bifida Community by providing clear, concise and comprehensive information, opportunities for social interaction and access to beneficial programs and equipment.

Our Vision:

- To develop the world's most comprehensive online resource for people effected with Spina Bifida
- To connect people effected by Spina Bifida with others in their local community who are similarly effected
- To provide financial support to people within the Spina Bifida community in the form of grants and scholarships for medical equipment, youth camps, educational opportunities and small business development.

Lofty goals with a humble beginning, to be sure. But with your help, it can be done.

Thank you for your support.